The entire month of November is Epilepsy Awareness Month, but today is a special day. November 9th is the second annual PCDH19 Epilepsy Awareness Day.

To celebrate we are asking supporters to share photos of themselves with purple balloons (purple outfits, purple hair, purple anything works too!). You can share them on instagram by tagging @thecutesyndrome and including #pcdh19 #thecute. You can also share them on our Facebook page: www.facebook.com/thecutesyndrome

It would really mean a lot to see some photos from all of you over the next few days…photos from wherever you are taken in a moment of solidarity with Esmé and the other girls who live with PCDH19 Epilepsy every day.

We have also produced a short awareness video that I will share with you here.
Please watch and think about these girls–and the others like them–today.

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