I am a features writer at Romper.com, where I write about parenting a child who is medical fragile and report on topics like the impact of healthcare laws and the ethics of prenatal testing. I can be heard telling stories about my experiences with my daughter Esmé on the popular 2017 Story Collider podcast titled "Outliers" and the 2017 Hole in the Wall Gang Camp Gala. I am also the Founder of the Cute Syndrome Foundation.
WHY I DO THIS WORK
When I was pregnant with my daughter I though that it would be my job to prepare her for the world. However, when my daughter was born limp, tiny, and struggling to breathe, I started to realize that I would need to better prepare the world for her. And so, in hopes of supporting my daughter and other children like her, I write, speak, consult, and advocate on a number of issues relating to the lives of children with complex medical needs.
WHO I AM
I have done my best to keep up with the plan in my daughter’s genes, embarking on seemingly unending journey into the place where science, medicine, and love collide. I also like mixing pretty cocktails, punching heavy bags at the boxing gym, and helping daughter communicate with her Muppet friends Ernie, Walter, Abby Cadabby, and Rosita (and begging her to finally stop blowing off Elmo).
If you are interested in articles, speaking engagements, workshops, or have questions about my advocacy work, please contact me via the social buttons or form below.