So many of you read about Ezzy every week. But as I was drafting a post today about some of the things Ezzy is doing, I realized how short my words fall in explaining her amazing abilities. Those of you who follow my writing about her know her in a very special way–through my eyes, … Read More
Special Needs Child
My Biggest Fear
The receptionist on the telephone is helpful as I try desperately to align my schedule with their availability. Scheduling appointments is never easy for me. Esmé’s therapies, her ever-changing daytime caregiver schedule, and my own obligations leave these tiny little cracks where I just might be able to squeeze in something to take care of … Read More
Um, no.
Today I want to talk a bit about sensitivity. I want to write about how sharing the world with other humans requires that we think about how our actions, our words, our postures impact the people around us. This is true of all people, all people are deserving of the thoughtful attention of the people … Read More
Summer camp
On Tuesday Ezzy went to the summer camp program at the independent school she visits once a week. We’ve missed a number of camp days due to trips to Boston, a few days of sickness that I worried might be viral, and days that it was just too hot for her to play outside. But … Read More
When she is five she’ll talk, right?
A few weeks ago I was in our grocery store parking lot getting Ezzy settled and feeding her the last of her tube-food before we headed in when I noticed a familiar face walking toward us. It was Marilyn Hunter, one of my high school Spanish teachers. We’ve run into each other a few times … Read More
Five Things I’ve Said to Strangers That Were Not Jokes
I used to get jealous looks from the moms of the tantruming toddler and the whiny pre-tween as I pushed my quiet solemn child around the grocery store. But lately we aren’t flying under the radar anymore. Part of it is that people have begun to register Esmé’s unusual motions, the bit of drool sliding … Read More
My Gift
Yesterday I read a post written by a fellow contributor to The Mighty, Laurie Arnold, “When My Mom Asks ‘Why, God?’ About My Child With Special Needs.” The post just floored me. Please go to read the original post on her blog, I’m Julia’s Mom, or The Mighty, but the crux of it has to do … Read More
Whoosh
My second short book, Whoosh, will be coming out on July 15th. It is currently available for preorder through Amazon. It will also be available as part of the six-story paperback and e-book compilation, 6 of 1 Childhood, released by Ponies + Horses Books. This story has not been an easy one for me to … Read More
Esmé on the New York Times Parenting Blog!
I wanted to let all of my readers know that there is some exciting news about Esmé up on the New York Times parenting blog, Motherlode! You should all check it out!
Traveling
On Tuesday Ez and I had a bit of a rough day. I was not feeling myself and neither was she. Ez is on a two-week summer break from therapies and our nurse was out, so our day was spent at a much slower than usual pace. Since we’ve started Esmé’s new nighttime sleep routine … Read More