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CAREGIVER PTSD SERIES

Recently, I published the series This Changes Everything on Romper about Post-Traumatic Stress Disorder (PTSD) in mothers raising children with medical complexities and developmental delays. The existence of PTSD in mothers in this population is an open secret, yet there is all but a complete lack of research into this topic. Read the reported feature included in the series, in which I discuss what we do know about PTSD and caregivers, including what I learned in interviews with medical professionals and parents. And at the This Changes Everything hub explore the long form interviews of six mothers raising children with medical complexities--their stories will change the way you look at motherhood and trauma.

ABOUT ME

I am Hillary. I’m a lot of things: a PhD, a writer, rare disease community engagement consultant, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, developmentally-delayed, and a bit of a scientific mystery. Since becoming Esmé's mother I have devoted myself to trying to improve the lives of children like Esmé through storytelling, education, advocacy, and medical research.

Check out the writing and consulting services I offer or scroll down to see examples of my work.

 

MY WORK

Healthcare and Medicaid Advocacy

Advocacy and Public Speaking
Healthcare and Medicaid Advocacy

This Changes Everything, Romper

Select Publications
This Changes Everything, Romper

National Dance Institute DREAM Project, Romper

Select Publications
National Dance Institute DREAM Project, Romper

Interview, Rare Cast Podcast

Advocacy and Public Speaking
Interview, Rare Cast Podcast

Feeding Tube Awareness Campaign

Advocacy and Public Speaking
Feeding Tube Awareness Campaign

SCN8A Mutation Awareness Campaigns

Advocacy and Public Speaking
SCN8A Mutation Awareness Campaigns

Interview, Bold Medicine Podcast

Advocacy and Public Speaking
Interview, Bold Medicine Podcast

Interview, Write Boom Podcast

Advocacy and Public Speaking
Interview, Write Boom Podcast

Ohio “Down Syndrome Abortion Ban”, Romper

Select Publications
Ohio “Down Syndrome Abortion Ban”, Romper

Hole in the Wall Gala

Advocacy and Public Speaking
Hole in the Wall Gala

Whoosh

Books
Whoosh

NYS Caregiver Wages

Advocacy and Public Speaking
NYS Caregiver Wages

Lilac Love

Cocktails
Lilac Love

The Industry Sour Cocktail

Cocktails
The Industry Sour Cocktail

Outliers, Story Collider

Advocacy and Public Speaking
Outliers, Story Collider

Around and Into The Unknown

Books
Around and Into The Unknown

The Bee’s Knees Cocktail

Cocktails
The Bee’s Knees Cocktail

To The Mom Blocking the Bathroom Stall, The Mighty

Select Publications
To The Mom Blocking the Bathroom Stall, The Mighty

Esmé Can Read, Motherlode

Select Publications
Esmé Can Read, Motherlode

The Cute Syndrome Foundation

Advocacy and Public Speaking
The Cute Syndrome Foundation

ASK ESMÉ'S MOM

Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 13: Let Us Talk is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.

ASK ESMÉ'S MOM

Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 13: Let Us Talk is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.

PRAISE FOR MY WORK

“Most love falls between constraints, always conditional, always defined. What I see between this mother and her child transcends that.  I don’t have a name for it, it defies definition in the concrete but it is beautiful to watch as it speaks to the limitless of our capacity to feel.”

Brent Stirton, Getty Images

“Clear, resonate, well-paced, and, often irrepressible, Hillary Savoie’s memoir shows us how love, even desperation, can drive the quest of science, and unearth a power of salvation. In the process, she proves to be the best kind of science writer—one with nerve.”

 

Jim Kozubek, Author of Modern Prometheus: Editing the Human Genome with Crispr-Cas9

CONTACT ME

If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.

Also, if you have questions about articles, speaking engagements, or my consulting services, that's great too! Drop me an email or find me on social media: 

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