My Writing

Whether I’m writing about rare disease, disability, science, or the unexpected lessons of motherhood, I’m interested in the stories we tell about ourselves and one another—and how those stories shape what we understand, what we value, and what we believe is possible.

Featured Work

Stories about caregiving, rare disease, resilience, and the love that shapes how we care for one another.

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Written candidly, with unrelenting insight and brutal emotional honesty. Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with genetic diagnosis or undergoing genetic testing.

My Writing

Featured Work

When Your Kid's Heart Stops, There's No Before

This Changes Everything: A Look at PTSD in Parents

Esmé's Genes

Whoosh

Hole in the Wall Gang Camp Gala

Around and Into the Unknown

Written candidly, with unrelenting insight and brutal emotional honesty. Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with genetic diagnosis or undergoing genetic testing.

Susan Agrawal, Editor Complex Child Magazine, Praise for Around and Into the Unknown