Writing. Speaking. Translation.

Whether I’m writing an essay, advising a biotechnology company, or speaking on stage, I’m interested in the same question: How can better stories lead to better science—and a more compassionate world?

Featured Work

Stories about caregiving, rare disease, resilience, and the love that shapes how we care for one another.

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When Your Kid's Heart Stops, There's No Before

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This Changes Everything: A Look at PTSD in Parents

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Esmé's Genes

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Whoosh

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Hole in the Wall Gang Camp Gala

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Around and Into the Unknown

Written candidly, with unrelenting insight and brutal emotional honesty. Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with genetic diagnosis or undergoing genetic testing.

Susan Agrawal, Editor Complex Child Magazine, Praise for Around and Into the Unknown

Hear Hillary Speak

Speaking is where all of my worlds come together. I love helping audiences see familiar problems from an unexpected angle—whether we’re talking about rare disease, storytelling, ethics, leadership, or why better science begins with better conversations.