Hillary lives where science, narrative, and love collide
Consulting, speaking, and strategy for organizations building better science for rare diseases.
“
Hillary Savoie knows how to engage an audience, not just with wit and eloquence, but with passion and vulnerability and genuine heart. Her unforgettable story about her daughter, Esmé, left our audience rapt, but also made them feel as if she and Esmé were people they really knew, and loved."
Erin Barker, Artistic Director, Story Collider
Hillary translates between worlds that rarely understand one another
Hillary Savoie is a writer, speaker, and rare disease advocacy strategist who has spent more than a decade translating between worlds that rarely speak the same language. From boardrooms to hospital rooms, research labs to living rooms, her work explores what happens when science, lived experience, and story are allowed to inform one another.
Whether speaking, writing, or advising organizations, Hillary helps bridge the gap between the people pursuing scientific breakthroughs and the people whose lives depend on them. She believes that better science begins with better conversations—and that the stories we tell shape the futures we build.
She lives where science, narrative, and love collide.
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