My Speaking

My Speaking

Whether I’m speaking about the limits of how we measure success, the difference between listening to patients and acting on their expertise, or the complicated relationship between advocacy and identity, my work begins by challenging what we think we understand—and exploring what becomes possible when we see things differently.

Commentary at FDA Rare Disease Framework Meeting

Hole in the Wall Gang Camp Gala

The Cute Syndrome Foundation Industry Panel

screenshot 2026 07 09 at 11.32.05 pm

Esmé's Genes