2016 In Review: Burns, Losses, and Magic

January 13, 2017Advocacy 2 Comments

Over the last few months I haven’t written here nearly as much as I promised myself I would—for a thousand reasons. It isn’t that I haven’t been writing. I’ve just been writing elsewhere…sometimes very publicly and sometimes working on the private words I’m not sure if I’ll ever let out of my computer. As I … Read More

I see ripples when…

July 21, 2016Advocacy 25 Comments

I never thought I was a writer. And yet, here I am. This week I published words that terrified me…terrified and thrilled me. I’ve never felt as much or as little of a writer as I do right now, typing these words. *** When I was 15 my history teacher and met to review a … Read More

Get in Line

June 30, 2016Advocacy, Special Needs Child 8 Comments

Lately my notions of what is possible for Esmé are changing. I don’t mean the distant ones that I do my best to keep an open mind about: Will Esmé speak? Will Esmé walk? Will she fall in love? Will she find a way to share her talents with the world through some kind of … Read More

A thousand words.

May 6, 2016Advocacy, Special Needs Child 9 Comments

Yesterday a post I wrote appeared on the Boston Children’s Hospital Blog Thriving. The post was about Mother’s Day. As I worked on the post I dug through old photos from Esmé’s hospital stay around my first Mother’s Day, and I had a somewhat startling visceral response to what I found. Have you ever looked … Read More