SCN8A MUTATION AWARENESS
The Cute Syndrome Foundation raises awareness of SCN8A Mutations
Hillary founded the Cute Syndrome Foundation (TCSF) in 2013 after her daughter Esmé was diagnosed with the first of four genetic mutations. The foundation now focuses primarily on SCN8A Mutations--in 2017 TCSF celebrated the first international SCN8A Awareness Day. Hillary made the 2018 and 2017 Awareness Day videos about life with SCN8A below.