Somebody reset the seizure tracker

So, my brain has been programed to run as a seizure tracker. I always know how long it’s been. Even when I think I don’t know, my “guess” is always almost exactly right. I am just programmed this way.

Last seizure-free stint was 37 days.

Well, we are finally calling this one at 52 days seizure-free. That is a fantastic run…especially considering that during this time Ez had several sicknesses (including alarmingly high white blood cell count), 8 nights in the hospital (always a seizure-risk due to sleep disturbance), and major surgery.

But the flip-side should be obvious by now: yesterday Ezzy had more seizures. There were, essentially, five. I say “essentially” because one was like a series of around ten itty bitty ones all rolled into one. Two of the bigger ones also seemed to roll into one…I think threatening to let loose into a large seizure.

With the bigger ones she did the usual, stopped breathing, turned blue, and went limp. We had to “bag” her a bit to get her breathing again faster. We are pretty sure she would start up again on her own…we just don’t want to find out.

The return of the seizures was not as Earth-shattering as after the last stint. Last time when Ez had a seizure after 37 days, you may recall, I cried my way through it and was distraught for hours afterward. I may just have faced this seizure-free stint with less naiveté. Or, perhaps, it was because I have been “sure” several times that we would see a seizure over the last 52 days–so I was prepared. Or maybe it is the context of having been in the ICU so recently. It certainly helped that my hubby was home too…and that the first two weren’t so bad so I could prepare. But, I didn’t take this one as hard.

Mind you, I was upset. The list of creative expletives that ran through my head is astounding, even to me, and far too embarrassing to share here. (Seriously, the inside of my head could make a sailor blush.) And I was pretty ready to call 911 or go to the ER if she didn’t stop with the seizures…but I knew it would be ok. Or, rather, I was that kind of frightened that makes you very deliberate and calm…like this is all “normal.” And, for us, it still is, I guess.

Ez recovered, as Ezzy always does, beautifully. Despite the seizures and a whopper of a head cold, after resting she was silly and active and all Ezzy. That girl bounces!

So, here we start our ticker again (with a new record to beat):

0 days seizure free