Esmé is sick again. Yes, again. Honestly this has been non-stop. I know kids get sick all the time, but this is just ridiculous. I try very hard to balance her exposure…she does not attend school right now because we have felt like the germs are just too much for her. But she’s not in … Read More
The “Cute” Necklace
Our friends over at The Quiet Woods have designed ten limited edition “Cute” Necklace to benefit The Cute Syndrome Foundation (50% of proceeds go to TCS). This beautiful necklace is 17″ long with a 1″ bar stamped with the word “cute.” It is made entirely of sterling silver, adorned with a purple crystal for epilepsy awareness! … Read More
Thoughts on my Mother’s Day
I had an absolutely beautiful Mother’s Day yesterday. I, honestly, could not have imagined a more perfect balance of time with Ezzy, time as a family, time with my own mom, and time alone. And Ezzy was in the kind of delightful mood she is so known for…all day long. She was giggly and smiley … Read More
Mother’s Day: What she would say…
I just read a lovely post A Mother’s Day Letter for a Special Needs Mom it was an imagined Mother’s Day letter written from the perspective of a non-verbal child to his or her mother. Yeah, yeah, I got misty-eyed. But it made me think, I wonder what my girl would say to me for Mother’s Day? … Read More
The Cute Syndrome Video
I am happy to provide you with The Cute Syndrome’s official video:
15,000 pageviews!
Some time in the middle of the night yesterday we reached 15,000 pageviews. I am still astounded by our readership…We are so pleased to have such a loyal group of folks who follow what is going on in Esmé’s life. Here we are now growing exponentially and getting to celebrate such a wonderful milestone during … Read More
A little Cute Syndrome Joy!
An Announcement
As most of you know this is a pretty big week in our family. It is the two-year anniversary of Esmé’s amazing recovery from severe aspiration pneumonia and cardiac and respiratory arrest. Two years ago we were still waiting around the Intensive Care Unit at our hospital waiting to see whether Esmé would recover. The … Read More
Two Years Ago
Today marks the second anniversary of Esmé’s aspiration pneumonia and cardiac and respiratory arrest in the ER of a local community hospital. She was 3 1/2 months old. There are so many things about that day that changed everything for us. Through our 27 months with Esmé there have been a lot of pivotal moments: test … Read More
Stay Tuned
We are closing in on the second anniversary of the day Esmé aspirated so terribly… I still find it hard to know how to talk about this experience. When I do I feel myself feeling as though I am going to melt into a blubbering mess…or I hear my voice as though it is coming … Read More