ABOUT ME

I am Hillary. I’m a lot of things: a PhD, a writer, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, severely developmentally-delayed, and a bit of a scientific mystery. When I am not watching The Muppets with Esmé or emailing one of her two dozen doctors or therapists, I am writing about Esmé and working to raise money for medical research through the Cute Syndrome Foundation.

Learn more about me here.

MY WORK

Motherlode

Recent Publications
Motherlode

The Mighty

Recent Publications
The Mighty

Huffington Post Parenting Blog

Recent Publications
Huffington Post Parenting Blog

Romper

Recent Publications
Romper

The Bee’s Knees Cocktail

Cocktails
The Bee’s Knees Cocktail

The Industry Sour Cocktail

Cocktails
The Industry Sour Cocktail

Lilac Love

Cocktails
Lilac Love

Whoosh

Books
Whoosh

Around and Into The Unknown

Books
Around and Into The Unknown

The Cute Syndrome Foundation

Advocacy and Public Speaking
The Cute Syndrome Foundation

Disability Advocacy

Advocacy and Public Speaking
Disability Advocacy

Story Collider Podcast

Advocacy and Public Speaking
Story Collider Podcast

PRAISE FOR MY WRITING

 

“Written candidly, with unrelenting insight and brutal emotional honesty…While the genetic testing information she provides is surely helpful to others walking the same path, what is far more important is the context into which she places genetic diagnoses, mutations, and labels…Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with a genetic diagnosis or undergoing genetic testing.”

Susan Agrawal, Editor Complex Child Magazine – Praise for Around and Into the Unknown

“Hillary has been a commanding force in writing about raising a child who is medically fragile ever since joining Romper.com. I appreciate and am constantly awed by the breadth of her perspective and the honesty she writes with, and it’s something our readership respects as well. Hillary has proven time and time again that what you see is what you get: real, authentic, powerful, devastating, bold, and thought-provoking. I can’t tell you how many times I’ve read a piece of her work and been amazed by her ability to tackle her life with purpose and drive, something I image is not easy to do day in and day out in a culture always seeking to otherize her (and Esmé’s) experience.”

 

Kylie McConville, Deputy Editor, Romper.com

 

CONTACT ME

If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.

Also, if you have questions about articles, speaking engagements, or workshops, that's great too! Drop me an email or find me spending too much time on social media: