ASK ESMÉ'S MOM

Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 5 is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.

ABOUT ME

I am Hillary. I’m a lot of things: a PhD, a writer, rare disease community engagement consultant, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, developmentally-delayed, and a bit of a scientific mystery. Since becoming Esmé's mother I have devoted myself to trying to improve the lives of children like Esmé through storytelling, education, advocacy, and medical research.

Check out the writing and consulting services I offer or scroll down to see examples of my work.

 

MY WORK

Around and Into The Unknown

Books
Around and Into The Unknown

The Bee’s Knees Cocktail

Cocktails
The Bee’s Knees Cocktail

The Cute Syndrome Foundation

Advocacy and Public Speaking
The Cute Syndrome Foundation

The Industry Sour Cocktail

Cocktails
The Industry Sour Cocktail

SCN8A Mutation Awareness Campaigns

Advocacy and Public Speaking
SCN8A Mutation Awareness Campaigns

Lilac Love

Cocktails
Lilac Love

Feeding Tube Awareness Campaign

Advocacy and Public Speaking
Feeding Tube Awareness Campaign

Interview, Bold Medicine Podcast

Advocacy and Public Speaking
Interview, Bold Medicine Podcast

Interview, Write Boom Podcast

Advocacy and Public Speaking
Interview, Write Boom Podcast

Hole in the Wall Gala

Advocacy and Public Speaking
Hole in the Wall Gala

Healthcare and Medicaid Advocacy

Advocacy and Public Speaking
Healthcare and Medicaid Advocacy

NYS Caregiver Wages

Advocacy and Public Speaking
NYS Caregiver Wages

PRAISE FOR MY WORK

“Featured on our most popular episode of the year so far, Hillary Savoie knows how to engage an audience, not just with wit and eloquence, but with passion and vulnerability and genuine heart. Her unforgettable story about her daughter, Esme, left our live audience rapt, but also made them feel as if she and Esme were people they really knew, and loved.”

 

Erin Barker, Artistic Director, Story Collider

“Moving, witty and totally riveting – hits a sweet spot between science and family that Radiolab listeners will love. Perfect summer read (just make sure you have your kleenex close by!)”

Channing Rodman – Praise for Around and Into the Unknown

CONTACT ME

If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.

Also, if you have questions about articles, speaking engagements, or my consulting services, that's great too! Drop me an email or find me on social media: