JUST ARRIVING FROM THE CUTE SYNDROME BLOG?
I am Hillary--mother of Esmé, a.k.a. The Cute, and Cute Syndrome blogger. I'll be writing here from now on--about Esmé and all sorts of other things. But, don't worry...all your favorite posts are still there. They haven't gone anywhere! Check out my welcome to the blog. And keep scrolling to learn more about me...
I am Hillary. I’m a lot of things: a PhD, a writer, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute five-year-old girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, severely developmentally-delayed, and a bit of a scientific mystery. When I am not watching Yo Gabba Gabba, hitting the boxing gym, or emailing one of our two dozen doctors or therapists, I am writing about Esmé and working to raise money for medical research through the Cute Syndrome Foundation.
PRAISE FOR MY WRITING
“Written candidly, with unrelenting insight and brutal emotional honesty…While the genetic testing information she provides is surely helpful to others walking the same path, what is far more important is the context into which she places genetic diagnoses, mutations, and labels…Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with a genetic diagnosis or undergoing genetic testing.”Susan Agrawal, Editor Complex Child Magazine – Praise for Around and Into the Unknown
“Most love falls between constraints, always conditional, always defined. What I see between this mother and her child transcends that. I don’t have a name for it, it defies definition in the concrete but it is beautiful to watch as it speaks to the limitless of our capacity to feel.”Brent Stirton, Getty Images
If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.
Also, if you have questions about articles, speaking engagements, or workshops, that's great too! Drop me an email or find me spending too much time on social media: