I am Hillary. I’m a lot of things: a PhD, a writer, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, severely developmentally-delayed, and a bit of a scientific mystery. When I am not watching The Muppets with Esmé or emailing one of her two dozen doctors or therapists, I am writing about Esmé and working to raise money for medical research through the Cute Syndrome Foundation.
PRAISE FOR MY WRITING
“Written candidly, with unrelenting insight and brutal emotional honesty…While the genetic testing information she provides is surely helpful to others walking the same path, what is far more important is the context into which she places genetic diagnoses, mutations, and labels…Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with a genetic diagnosis or undergoing genetic testing.”Susan Agrawal, Editor Complex Child Magazine – Praise for Around and Into the Unknown
“Hillary’s writing is nothing short of goose bump inducing. It’s prose with the heart of poetry and personal stories made universal. For parents on a similar journey, her words strike a deep down place– one that often remains neglected or misunderstood.”
Mary Evelyn Smith, What Do You Do Dear?
If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.
Also, if you have questions about articles, speaking engagements, or workshops, that's great too! Drop me an email or find me spending too much time on social media: