ASK ESMÉ'S MOM

Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 10: On Giving Up is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.

ABOUT ME

I am Hillary. I’m a lot of things: a PhD, a writer, rare disease community engagement consultant, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, developmentally-delayed, and a bit of a scientific mystery. Since becoming Esmé's mother I have devoted myself to trying to improve the lives of children like Esmé through storytelling, education, advocacy, and medical research.

Check out the writing and consulting services I offer or scroll down to see examples of my work.

 

MY WORK

A Rare Opportunity, Huffington Post

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A Rare Opportunity, Huffington Post

On Not Being Brave, The Mighty

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On Not Being Brave, The Mighty

Ohio “Down Syndrome Abortion Ban”, Romper

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Ohio “Down Syndrome Abortion Ban”, Romper

Whoosh

Books
Whoosh

Now You See Us, Romper

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Now You See Us, Romper

Around and Into The Unknown

Books
Around and Into The Unknown

The Bee’s Knees Cocktail

Cocktails
The Bee’s Knees Cocktail

The Cute Syndrome Foundation

Advocacy and Public Speaking
The Cute Syndrome Foundation

The Industry Sour Cocktail

Cocktails
The Industry Sour Cocktail

SCN8A Mutation Awareness Campaigns

Advocacy and Public Speaking
SCN8A Mutation Awareness Campaigns

Lilac Love

Cocktails
Lilac Love

Feeding Tube Awareness Campaign

Advocacy and Public Speaking
Feeding Tube Awareness Campaign

PRAISE FOR MY WORK

“Moving, witty and totally riveting – hits a sweet spot between science and family that Radiolab listeners will love. Perfect summer read (just make sure you have your kleenex close by!)”

Channing Rodman – Praise for Around and Into the Unknown

“Clear, resonate, well-paced, and, often irrepressible, Hillary Savoie’s memoir shows us how love, even desperation, can drive the quest of science, and unearth a power of salvation. In the process, she proves to be the best kind of science writer—one with nerve.”

 

Jim Kozubek, Author of Modern Prometheus: Editing the Human Genome with Crispr-Cas9

CONTACT ME

If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.

Also, if you have questions about articles, speaking engagements, or my consulting services, that's great too! Drop me an email or find me on social media: