ASK ESMÉ'S MOM
Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 13: Let Us Talk is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.
I am Hillary. I’m a lot of things: a PhD, a writer, rare disease community engagement consultant, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, developmentally-delayed, and a bit of a scientific mystery. Since becoming Esmé's mother I have devoted myself to trying to improve the lives of children like Esmé through storytelling, education, advocacy, and medical research.
Check out the writing and consulting services I offer or scroll down to see examples of my work.
PRAISE FOR MY WORK
“Most love falls between constraints, always conditional, always defined. What I see between this mother and her child transcends that. I don’t have a name for it, it defies definition in the concrete but it is beautiful to watch as it speaks to the limitless of our capacity to feel.”Brent Stirton, Getty Images
“Written candidly, with unrelenting insight and brutal emotional honesty…While the genetic testing information she provides is surely helpful to others walking the same path, what is far more important is the context into which she places genetic diagnoses, mutations, and labels…Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with a genetic diagnosis or undergoing genetic testing.”Susan Agrawal, Editor Complex Child Magazine – Praise for Around and Into the Unknown
If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.
Also, if you have questions about articles, speaking engagements, or my consulting services, that's great too! Drop me an email or find me on social media: