ASK ESMÉ'S MOM

Check out my new vlog project, Ask Esmé's Mom, where I answer questions about raising a child with severe disabilities. Episode 12: Back to School is available now, subscribe to the YouTube Channel so you don't miss any future episodes. Do you have a question you want to ask Esmé's Mom? Use this form to submit question.

ABOUT ME

I am Hillary. I’m a lot of things: a PhD, a writer, rare disease community engagement consultant, a non-profit founder, a mixer of oddball cocktails...But most importantly? I am the mom of a ridiculously fun, goofy, determined, and super cute little girl named Esmé. Esmé is my best buddy, my muse, and my teacher. Esmé is also medically-fragile, developmentally-delayed, and a bit of a scientific mystery. Since becoming Esmé's mother I have devoted myself to trying to improve the lives of children like Esmé through storytelling, education, advocacy, and medical research.

Check out the writing and consulting services I offer or scroll down to see examples of my work.

 

MY WORK

Interview, Write Boom Podcast

Advocacy and Public Speaking
Interview, Write Boom Podcast

Hole in the Wall Gala

Advocacy and Public Speaking
Hole in the Wall Gala

Healthcare and Medicaid Advocacy

Advocacy and Public Speaking
Healthcare and Medicaid Advocacy

NYS Caregiver Wages

Advocacy and Public Speaking
NYS Caregiver Wages

Outliers, Story Collider

Advocacy and Public Speaking
Outliers, Story Collider

Esmé Can Read, Motherlode

Select Publications
Esmé Can Read, Motherlode

To The Mom Blocking the Bathroom Stall, The Mighty

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To The Mom Blocking the Bathroom Stall, The Mighty

A Rare Opportunity, Huffington Post

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A Rare Opportunity, Huffington Post

On Not Being Brave, The Mighty

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On Not Being Brave, The Mighty

Ohio “Down Syndrome Abortion Ban”, Romper

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Ohio “Down Syndrome Abortion Ban”, Romper

Whoosh

Books
Whoosh

Now You See Us, Romper

Select Publications
Now You See Us, Romper

PRAISE FOR MY WORK

“Written candidly, with unrelenting insight and brutal emotional honesty…While the genetic testing information she provides is surely helpful to others walking the same path, what is far more important is the context into which she places genetic diagnoses, mutations, and labels…Her framing of genetic mutations as the beauty of human diversity is invaluable for other families coping with a genetic diagnosis or undergoing genetic testing.”

Susan Agrawal, Editor Complex Child Magazine – Praise for Around and Into the Unknown

“Hillary’s writing is nothing short of goose bump inducing. It’s prose with the heart of poetry and personal stories made universal. For parents on a similar journey, her words strike a deep down place– one that often remains neglected or misunderstood.”

 

Mary Evelyn Smith, What Do You Do Dear?

CONTACT ME

If you want to talk about cocktails, my questionable boxing skills, or just tell me abut how adorable my daughter is, I'd be thrilled to hear from you.

Also, if you have questions about articles, speaking engagements, or my consulting services, that's great too! Drop me an email or find me on social media: