The Cute’s Guide to Camp Fashion

June 8, 2016 No Comments

  Last weekend my darling daughter Esmé, aka The Cute, was invited to attend a family weekend for kids with rare diseases at Hole in the Wall Gang Camp in Ashford Connecticut. If you have never heard of this place, it is something you absolutely need to know about. The camp was founded in 1988 … Read More

Grin Like You Mean It

June 2, 2016Special Needs Child No Comments

I want to talk about something really important. It is something that is as essential to my survival as oxygen. It is this smile:   This smile is basically the best thing in the world, if you ask me.  It is a wide open tongue-filled smile that says “Oh my god, I cannot even believe … Read More

Gin! Homemade (compound) gin!

May 30, 2016 No Comments

Last week I realized that a person can make her own gin. So, I immediately set to making gin…because what else did I have to do? Prepare for my kid’s IEP meeting? Pshaw. Send out letters from the foundation? Yawn…Complete the testing for my potential new job? Child, please. Now before you all get overly … Read More

Welcome New Readers!

May 19, 2016Uncategorized 8 Comments

If you were sent here by Scary Mommy, welcome! (All, uh, thousands of you! I’m like 70% sure the blog won’t break from all the traffic, so, please, get comfortable!) Allow me to make some introductions. This is my daughter, Esmé, a.k.a. The Cute. I’m Hillary, Esmé’s Maman (that’s French for Mom).       … Read More

Have Cocktail Case, Will Travel

May 13, 2016Cocktail No Comments

Once, a long long time ago…last weekend…my mother gave me a vintage traveling cocktail set. The gift really blew my mind. Mom said, “I thought you could use it as a prop in some of your photos. I doubt you can use it for actually mixing.” To which I replied, “Nay, mother, nay. I shall … Read More

Dance like nobody’s watching

May 11, 2016Special Needs Child 17 Comments

Esmé is a born dancer. All her life she’s been excited by the music she loves–which is a whole lot of music–and calmed by the music she really, really loves–like the Muppets and the Small Potatoes. Music has always moved her…even when she could barely move. Here she is a four months old, unable to … Read More

A thousand words.

May 6, 2016Advocacy, Special Needs Child 9 Comments

Yesterday a post I wrote appeared on the Boston Children’s Hospital Blog Thriving. The post was about Mother’s Day. As I worked on the post I dug through old photos from Esmé’s hospital stay around my first Mother’s Day, and I had a somewhat startling visceral response to what I found. Have you ever looked … Read More

Violet Sour

May 2, 2016Cocktail No Comments

There are violets growing all over my yard right now. Seeing them reminded me of the candied violets my mother and father brought back from the trip they took to Paris when I was five. (Interestingly, my mom won this trip in a Meryl Streep look-alike contest…true story. They look eerily much alike.) Back to … Read More